Resources for those
living with IgAN
Having access to communities and materials can help you on your journey with IgAN.
You may want or need help talking with your doctors or friends and family about IgA nephropathy (IgAN). The tools and links to communities and resources may help you track your kidney health and explain this disease to others.
Tools & Resources
How IgA nephropathy affects you
Understanding how IgA nephropathy starts and progresses is important. This video explains the 4-hit process, a harmful chain reaction that starts with your immune system and leads to kidney damage. The video also discusses the role of APRIL, an immune messenger, and some of the ways researchers are rethinking IgA nephropathy.
Information about IgAN
This brochure is intended to help people with IgA nephropathy and their loved ones better understand this complicated and unpredictable kidney disease. Use this reference when you want help understanding or explaining IgA nephropathy.
Rethink IgA nephropathy
Understanding the 4-hit process is key to rethinking IgA nephropathy. This infographic explains how the harmful chain reaction of IgA nephropathy starts, why it keeps progressing, and the role of APRIL, an immune messenger.
Talking with your nephrologist
Being able to talk with your nephrologist about IgAN is important. Asking questions is a great way to learn more about your condition. These questions are intended to help when you have questions but don’t know where to start or what to ask. Feel free to download them and take them to your next appointment.
IgAN care plan
An IgAN care plan is designed to help protect your remaining kidney function. This downloadable PDF provides an overview of the key components of an IgAN care plan. It also has space for you to take notes as you and your nephrologist create a care plan personalized for you.
These tools have been created for you
We’ll be adding new content on a regular basis—patient stories, lifestyle tips, important resources, and more. Be sure to sign up so you can be notified.
Community
Support
The IgA Nephropathy Foundation was created by patients, for patients. Their mission is to be a patient-centric organization focused on finding a cure for IgA nephropathy. You can learn about events, find more resources about IgAN, or become a member or ambassador. Click on the button to learn more about what they offer.
NephCure is shaping the future of rare kidney disease (RKD) by empowering patients to take charge of their health, while leading the revolution in research, new treatments, and care. They are the only kidney organization focused on protein-spilling kidney diseases like IgAN. Click on the button to discover how NephCure helps patients.
The American Kidney Fund works on behalf of 1 in 7 Americans living with kidney disease. From raising awareness to collecting donations to helping patients better understand the kidney transplant process, AKF supports people wherever they are in their fight, from prevention through post-transplant living. Click on the button below to learn more about AKF.
The National Kidney Foundation is revolutionizing the fight to save lives by eliminating preventable kidney disease.
Their foundation offers multiple ways to get involved as an advocate, a volunteer, or a participant in research. Click on the button to find out more.
APRIL=A PRoliferation-Inducing Ligand
IgAN=Immunoglobulin A nephropathy
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